Welcome to Yafaau's website

Written by Yasiph
Monday, 01 January 2007
Introduction This website contains detailed information on Yafaau's medical History , reports and developmental progress. Yafaau is a 7 year old boy delivered in IGM Hospital with Acquired Cerebral Palsy living in Maldives. Ahmed Yafaau Yasiph was born on January 4, 2003. He was born with no breathing, no heartbeat and doctors confirmed that he suffered from Asphyxia or HIE (Severe oxygen shortage in the brain during labour and delivery) and now he is suffering a disorder called Cerebral Palsy . Possible Cause It is believed that there must have been severe oxygen shortage in the brain during labour and delivery. The newborn infant's blood is specially equipped to compensate for low levels of oxygen, and asphyxia (lack of oxygen caused by interruption in breathing or poor oxygen supply) is common in babies during the stresses of labour and delivery. But asphyxia severely lowered the supply of oxygen to Yafaau's brain for a lengthy period, which developed brain damage called hypoxic-ischemic encephalopathy(HIE). A significant proportion of babies with this type of brain damage die, and others may develop cerebral palsy, which is then often accompanied by mental impairment and seizures. Doctors were trying their best to deliver Yafaau. They even tried Vacuum extraction. Even after hours of effort, they were unable to deliver him. Doctors gave up hope on him. When Yafaau was born(natural birth), he was not breathing, had no heartbeat. But Luckily Yafaau is with us. He is my first child and is a lovely boy and we are happy that he is here with us. As mentioned above he is having seizures and taking medicine that makes him less aware of his environment which reduces stimulation to him. Visit Yafaau's blog for recent updates from Yafaau's Dad A Website! We were concerned and desperate that we turned our eyes on the internet for information. Finding the right information was time consuming and boring. But what we found was encouraging and took hope from it - and our goal in building this website was to provide that same hope to others in similar situations. This website also provide family support, public information and awareness specifically for issues of importance to those who have cerebral palsy. It also supports ways to prevent Cerebral Palsy and discuss/develop therapies to improve the quality of life for those effected by this disorder in Maldives. The website also helped in consulting doctors abroad. Their advice and recommendations helped us through anxiety about Yafaau's progress. Our forum also helped us improve the communication gap between doctors/parents. We started at a free blog space (yafaau.brinkster.com) and later at blogger.com With kind assistance from Mr & Mrs Kit Chambers Yafaau.org was taken and used as a blog/forum type of media which we got a lot of contributing articles from Dr.Niyaf who was at Austrailia then. Yafaau.info was later launched at yafaau's 4th birthday family party in which we took some photos. Click here to see them. See the Photos here
Last Updated ( Monday, 15 March 2010 )

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How is Yafaau?

Yafaau is generally ok but we are concerned about his low weight. He's getting thinner day by day, although we try every effort not to let that happen. With feeding difficulty, we are also limited to different textures of food because he is on semi-solid food diet. We also could not give just any food as he is prone to constipation and that has been a concern since his early years.

But he is Fun to be with, smiles and even laughs on when we play with him. Samiya, my wonderful wife makes my life easier takes great care of him and am sort a happy with how he's improving. Slowly but surely :)

Thank you for being with us at Yafaau's FanClub

Thank you all very much for your blessings and concern, and thank you for being with us.

I'd like to remind all of you on Yafaau's FanClub again about telling young minds about children like Yafaau. Talking to young children about children with disAbilities do help them understand more about these "unusual" kids or maybe adults. Many "special" parents still feel difficult to be in public places due to community's response on their child. I however feel if children in our community is openly explained and their parents are made aware of the fact that it is okay to approach and ask "special" parents questions they do not happen to know. Because most of them don't know of any child or a person with a disAbility. Anyway, We can and we will, insha Allah see that day.