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Written by Yasiph   
Tuesday, 13 March 2007

NOTE: NOT FOR FAINT HEARTED

These Videos here are taken via a digital camera and it might not be very clear at times. For your ease of use I have a picture, followed by its description, date and file size. In description you see time in seconds followed by its Intensity(L=Low,M=Medium,H=High and HH=High high) I have used the term "Convulsion" assuming sudden uncontrollable jerky movements of the body caused by contraction of muscles. This is what I think is happening here but please do see the videos because a trained eye can point out many unseen clues from me because I am not a doctor myself.

Age this Video taken : 2 year 7 months 3 days. This is a 20 sec clip. Notable seconds 00:00 to 00:09HH, 00:10,00:11 On the 00:12 We realised the intensity of this convulsion only when we took a look at the video. This is a HH convulsion. http://www.youtube.com/watch?v=gGNPw6sSYE4
Age this Video taken : 2 year 4 month 11 days. This is a 01 min 15 sec clip. Notable seconds 00:01L,00:14M,00:24L,00:30L,00:36L,00:42L,00:52M Some times he opens mouth or smiles after a convulsion. http://www.youtube.com/watch?v=iHiCwHxLa-Q

Age this Video taken : 2 year 4 month 11 days. This is a 01 min 15 sec clip. Notable seconds 00:01L,00:14M,00:24L,00:30L,00:36L,00:42L,00:52M Some times he opens mouth or smiles after a convulsion. http://www.youtube.com/watch?v=9rnU_ZP7e4Y
 
More Videos are uploaded at my page at YouTube.com http://www.youtube.com/yasiph

Medicines
Early months
Phenobarbitone: birth to 6 months

until 23rd August 2005
Clonazepam(Rivotril): 1tab bd
Sodium Valproate(Valparin 200mg): 2.5ml bd

Now (13 Mar 2007)
Clonazepam(Rivotril 0.5mg): 1tab od
Baclofen(Lioresal 10mg): 1/4th tab od
Sodium Valproate(Valparin 200mg): 3.5ml bd (12 Dec 2006)

Note: What at first diagnosed as colic was later described as a convulsion. It started early as a small twitch has been changing its form day by day. As of June 2005 the convulsions were longer at times, about 4 seconds. Also there was always the 1st Jan 2004 type of jerk when he is trying to sleep. When the convulsion intensity is high he does not give an unvoluntary smile(see video with an involuntary smile 23rd Mar 2004-6) later, he cries with a lot of pain(24 Mar 2005, 07 August 2005 ). A lot has been described by physicians about the type; salaam attacks, infantile spasm, west syndrome, fit, seizure but I have refered as a convulsion throughout this page.

Stopped!

Since 4:30am of 12th Nov 2005, We did not observe any form of the above convulsions! There was no change in the medication or food. Updated: 24 Aug 2006

 

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Last Updated ( Tuesday, 13 March 2007 )
 

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We will be heading to Raa Atoll Vadhoo, Yafaau's mom's island for this annual vacation starting 13th december 07 to 12th January 08. But we hope to update blog and status updates on facebook.
 

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