Videos - Yafaau's website

Videos

Written by Yasiph

Tuesday, 13 March 2007

NOTE: NOT FOR FAINT HEARTED

These Videos here are taken via a digital camera and it might not be very clear at times. For your ease of use I have a picture, followed by its description, date and file size. In description you see time in seconds followed by its Intensity(L=Low,M=Medium,H=High and HH=High high) I have used the term "Convulsion" assuming sudden uncontrollable jerky movements of the body caused by contraction of muscles. This is what I think is happening here but please do see the videos because a trained eye can point out many unseen clues from me because I am not a doctor myself.

Age this Video taken : 2 year 7 months 3 days. This is a 20 sec clip. Notable seconds 00:00 to 00:09HH, 00:10,00:11 On the 00:12 We realised the intensity of this convulsion only when we took a look at the video. This is a HH convulsion. http://www.youtube.com/watch?v=gGNPw6sSYE4

Age this Video taken : 2 year 4 month 11 days. This is a 01 min 15 sec clip. Notable seconds 00:01L,00:14M,00:24L,00:30L,00:36L,00:42L,00:52M Some times he opens mouth or smiles after a convulsion. http://www.youtube.com/watch?v=iHiCwHxLa-Q

More Videos are uploaded at my page at YouTube.com http://www.youtube.com/yasiph

Medicines
Early months
Phenobarbitone: birth to 6 months

until 23rd August 2005
Clonazepam(Rivotril): 1tab bd
Sodium Valproate(Valparin 200mg): 2.5ml bd

Now (13 Mar 2007)
Clonazepam(Rivotril 0.5mg): 1tab od
Baclofen(Lioresal 10mg): 1/4th tab od
~~Sodium Valproate(Valparin 200mg): 3.5ml bd~~ (12 Dec 2006)

Note: What at first diagnosed as colic was later described as a convulsion. It started early as a small twitch has been changing its form day by day. As of June 2005 the convulsions were longer at times, about 4 seconds. Also there was always the 1st Jan 2004 type of jerk when he is trying to sleep. When the convulsion intensity is high he does not give an unvoluntary smile(see video with an involuntary smile 23rd Mar 2004-6) later, he cries with a lot of pain(24 Mar 2005, 07 August 2005 ). A lot has been described by physicians about the type; salaam attacks, infantile spasm, west syndrome, fit, seizure but I have refered as a convulsion throughout this page.

Stopped!

Since 4:30am of 12th Nov 2005, We did not observe any form of the above convulsions! There was no change in the medication or food. Updated: 24 Aug 2006

Usage TERMS & COPYRIGHTS NOTICE

The contents of this CD is copyrighted by Yasiph. Yasiph hereby authorizes you to copy documents/videos in this CDROM for noncommercial use within your organization only. In consideration of this authorization, you agree that any copy of these documents you make shall retain "© M.Yasiph http://www.yafaau.info" and other proprietary notices contained herein.

You may not otherwise copy or transmit the contents of this CD either electronically or in hard copies. You may not alter the content of this CD in any manner. All photos and documents must contain "© M.Yasiph http://www.yafaau.info" while using as any media, either for printing or case studies and with written permission. When copying videos, the copyright file included with the cdrom must be included within the same folder it resides. If you are interested in using the contents of this CD in any manner except as described above, please contact "mohammed.yasiph[at]maldivesinfo[dot]com" for information on licensing.

Last Updated ( Tuesday, 13 March 2007 )

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Newsflash

How is Yafaau?

Yafaau is generally ok but we are concerned about his low weight. He's getting thinner day by day, although we try every effort not to let that happen. With feeding difficulty, we are also limited to different textures of food because he is on semi-solid food diet. We also could not give just any food as he is prone to constipation and that has been a concern since his early years.

But he is Fun to be with, smiles and even laughs on when we play with him. Samiya, my wonderful wife makes my life easier takes great care of him and am sort a happy with how he's improving. Slowly but surely :)

Thank you for being with us at Yafaau's FanClub

Thank you all very much for your blessings and concern, and thank you for being with us.

I'd like to remind all of you on Yafaau's FanClub again about telling young minds about children like Yafaau. Talking to young children about children with disAbilities do help them understand more about these "unusual" kids or maybe adults. Many "special" parents still feel difficult to be in public places due to community's response on their child. I however feel if children in our community is openly explained and their parents are made aware of the fact that it is okay to approach and ask "special" parents questions they do not happen to know. Because most of them don't know of any child or a person with a disAbility. Anyway, We can and we will, insha Allah see that day.